I know it’s been a while since you’ve received an update, but we have been hard at work getting our organization ready for the research to begin. We’ve hired a lab, EverlumeBio, who you may remember conducted the Amenability Study in November 2023. With the initial research in place from this study, we were ready to begin to work toward a therapeutic for Casey’s HMERF. Since so much has happened between January and now, it is easiest for me to provide a link to the newsletter that was sent out at the end of August (2024). It provides you with the information that has developed in that time and we look forward to hearing from you. If the newsletter link isn’t working, please reach out to me chrisduane@caseys-cure.org and I’ll get one over to you as quickly as I can.
With regards and gratitude,
Chris Duane, Casey’s Mom ????
